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The UK NSC recommendation on Biliary atresia screening in newborns (currently in consultation)

 

This recommendation is currently being reviewed as part of the UK NSC's regular review cycle of all policies.

The review process began in Nov 2016 and is estimated to be completed by Dec 2017.

» Download the expert review for Biliary atresia (PDF document, 561KB)

The UK NSC welcomes comments and feedback on the expert review during the consultation period that lasts from 28/06/2017 until 28/09/2017. Please send comments to us by e-mail using this feedback form.

Please note that all consultation submissions will be published on this page when the review is complete. Full details can be found in the confidentiality and disclosure section at the bottom of this page.

Recommendation Systematic population screening programme not recommended
 

Find general information about population health screening.

More about Biliary atresia

Biliary atresia affects about 1 in 16,000 babies at birth. In this condition, bile ducts are either blocked or absent. The cause of the condition is not clear and may vary. One of the most common early symptoms is jaundice (a yellow appearance of the skin or whites of the eyes) and pale stools.

If untreated the condition can lead to liver failure and death. The most common treatments for Biliary Atresia is the Kasai procedure (surgery that allows bile to drain directly into the bowel).

Stakeholders

British Association for Study of the Liver
British Association of Perinatal Medicine
British Liver Nurses' Forum
The British Liver Trust
Children's Liver Disease Foundation
Royal College of Midwives
Royal College of Paediatrics and Child Health

The stakeholder groups will be involved when the recommendation is next reviewed. If you think your organisation should be added, please contact us. More information for stakeholders can be found in appendix C of the UK NSC evidence review process.

Related documents

icon Review of Biliary Atresia against UK NSC criteria - July 2012 (PDF document, 446KB, 28/06/17)
icon Summary of Policy Recommendations and Consultation Responses for Biliary Atresia 20 March 2013 (PDF document, 375KB, 26/07/13)

Confidentiality and disclosure

Information provided in response to this consultation, including personal information, may be subject to publication or release to other parties or to disclosure in accordance with the access to information regimes (these are primarily the Freedom of Information Act 2000, the Data Protection Act 1998, and the Environmental Information Regulations 2004). If you want information, including personal data that you provide to be treated as confidential, please be aware that, under the FOIA, there is a statutory Code of Practice with which public authorities must comply and which deals, amongst other things, with obligations of confidence.

In view of this it would be helpful if you could explain to us why you regard the information you have provided as confidential. If we receive a request for disclosure of the information we will take full account of your explanation, but we cannot give an assurance that confidentiality can be maintained in all circumstances. An automatic confidentiality disclaimer generated by your IT system will not, of itself, be regarded as binding on the UK National Screening Committee.

Any request for information to be treated in confidence will be taken into consideration in the publication of responses to the consultation. The UK National Screening Committee intends to publish all responses following the closure of the consultation period, however we will not publish responses from respondents who request that any of the information in their response, including personal data, should be handled in confidence. The UK National Screening Committee reserves the right not to publish or take into account any representations which are openly offensive or defamatory.

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