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Current UK NSC recommendations > Cystic Fibrosis (pregnancy)

The UK NSC recommendation on Cystic fibrosis screening in pregnancy (currently under review)


This recommendation is currently being reviewed as part of the UK NSC's regular review cycle of all policies.

The review process began in Aug 2011 and is estimated to be completed by Nov 2013.

Recommendation Systematic population screening programme not recommended

Find general information about population health screening.

More about Cystic Fibrosis (pregnancy)

Cystic Fibrosis (CF) was recognised as a specific entity by Dorothy Andersen of New York in 1938. The condition is characterised by early onset of severe intestinal malabsorption, failure to thrive and recurrent chest infections and pneumonia which, if untreated, leads to death from malnutrition and respiratory failure in infancy or early childhood. Due to improved treatment, particularly with antibiotics and better pancreatic enzyme replacement therapy, average survival has steadily improved to around 37 years.

» Read more about cystic fibrosis on NHS Choices


Cystic Fibrosis Trust
Genetic Alliance UK
Institute of Child Health
PHG Foundation
Royal College of General Practitioners
Royal College of Midwives
Royal College of Obstetricians and Gynaecologists
Wolfson Institute of Preventive Medicine

The stakeholder groups will be involved when the recommendation is next reviewed. If you think your organisation should be added, please contact us. More information for stakeholders can be found in appendix C of the UK NSC evidence review process.

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