Current UK NSC recommendations > Informed choice consultation
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Informed choice consultation


Consultation background

The UK National Screening Committee (UK NSC) has consulted on its guidance covering the development, production and review of information to support all UK population screening programmes.

This guidance document was produced by a four-country group to fulfil a recommendation made in the 2014 Parliamentary Science and Technology Committee Report on national health screening.
The report called for:
  • a more consistent approach to information provision across all programmes and countries
  • an agreed definition of the meaning of informed choice in the context of accepting or declining the offer of screening
The group agreed that the guidance would work best across the different contexts of the four UK countries if it was kept as clear, concise and non-prescriptive as possible, while adhering to best principles in providing health information.

Its purpose is to ensure that all national screening programmes share the same rigorous and transparent approach to developing and maintaining high quality information for the public and professionals.


Please note that this consultation is now closed.

We aim to publish the responses and an updated version of the guidance by February 2018.


Appendix A

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Appendix B

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Confidentiality and disclosure

Information provided in response to this consultation, including personal information, may be subject to publication or release to other parties or to disclosure in accordance with the access to information regimes (these are primarily the Freedom of Information Act 2000, the Data Protection Act 1998, and the Environmental Information Regulations 2004). If you want information, including personal data that you provide to be treated as confidential, please be aware that, under the FOIA, there is a statutory Code of Practice with which public authorities must comply and which deals, amongst other things, with obligations of confidence.

In view of this it would be helpful if you could explain to us why you regard the information you have provided as confidential. If we receive a request for disclosure of the information we will take full account of your explanation, but we cannot give an assurance that confidentiality can be maintained in all circumstances. An automatic confidentiality disclaimer generated by your IT system will not, of itself, be regarded as binding on the UK National Screening Committee.

Any request for information to be treated in confidence will be taken into consideration in the publication of responses to the consultation. The UK National Screening Committee intends to publish all responses following the closure of the consultation period, however we will not publish responses from respondents who request that any of the information in their response, including personal data, should be handled in confidence. The UK National Screening Committee reserves the right not to publish or take into account any representations which are openly offensive or defamatory.

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